(Greenville, S.C., December 10, 2020) — The South Carolina-based global health organization, American Leprosy Missions, in partnership with Ghana Health Services, has successfully designed, implemented and evaluated a new, cascaded training program for lymphatic filariasis in northern Ghana which has led to significant improvement in morbidity management practices among health workers and people affected.
Lymphatic filariasis (LF) is a debilitating neglected tropical disease (NTD). It can lead to complications including severe swelling of the lower limbs, known as lymphedema, resulting in lifelong disabilities which affect the ability to work, access to services, and social inclusion, often with catastrophic economic consequences for people affected and their families. In 2016, the Ghana NTD Program implemented a program in the Upper East Region to train health workers and people affected in basic lymphedema management and disability prevention.
In 2018, funding from the Coalition for Operational Research on Neglected Tropical Diseases (COR-NTD) was granted to American Leprosy Missions to work with the NTD Program to evaluate the initial project and design, implement and evaluate an enhanced, evidence-based training model in the Upper West Region of Ghana.
American Leprosy Missions worked with the NTD Program to redesign the training model for lymphedema management and disability prevention. Major improvements included:
- Addition of self-care training and training of family members
- Formation of self-care groups
- Inclusion of all levels of health staff, from hospitals to community volunteers, and tutors from nursing and midwifery colleges
- Introduction of new system of health data collection and reporting to the national level
Results from this project in the Upper West Region showed that quality of life was improved for participants. The robust end evaluation showed that patients practiced self-care more frequently and with more correct techniques than before the training program, and that they were supported by health staff and family members.
Bright Alomatu, NTD program officer for Ghana Health Services, says, “I believe the cascaded training down to the community health persons and community drug distributors has increased access to care. Patients no longer have to travel over long distances to access care.”
Based on the success of this project, the NTD Program will scale up this enhanced, evidence-based training program throughout the remaining 72 districts in Ghana where LF is widespread, improving care and reducing stigma.
This project expansion will benefit the 1,374 people currently known to be affected by LF lymphedema in those districts, and build the capacity of the health system to provide care for the more than 3.5 million people known to be at risk for disability from LF in Ghana.
Stefanie Weiland, executive vice president of programs at American Leprosy Missions, says, “We are thrilled that this project is improving access to health care for people suffering from LF in Ghana. We are looking forward to seeing this enhanced training program rolled out in endemic districts across the whole country so it can benefit even more people.”
This project, Improving access to Lymphatic Filariasis MMDP services through an enhanced evidence-based, cascade training model for health worker capacity strengthening in Ghana, received financial support from the Coalition for Operational Research on Neglected Tropical Diseases (COR-NTD), which is funded at The Task Force for Global Health primarily by the Bill & Melinda Gates Foundation, by the UK aid from the British government, and by the United States Agency for International Development through its Neglected Tropical Diseases Program. ntdsupport.org/cor-ntd
About American Leprosy Missions
American Leprosy Missions, based in Greenville, South Carolina, is the oldest and largest Christian organization in the United States dedicated to curing and caring for people affected by leprosy and related diseases. It currently supports projects, programs and partners in countries across Africa, Asia and the Americas. Since its founding in 1906, American Leprosy Missions has provided holistic care to more than four million people around the world including medical treatment and training, disease mapping and management, community development and vaccine research. leprosy.org
Photo caption: Saidi Kashindi, Francophone Region Program Manager, American Leprosy Missions, at the dissemination meeting.